Cystic Fibrosis Care

Jess is Running The Great North Run…!!

I'm running the Great North Run for Cystic Fibrosis Care

I'm running the Great North Run for Cystic Fibrosis Care

My Story

Anyone who knows me will know I am not a natural runner! So it may not be fast or pretty, but I am going to be dragging myself round the GNR for CF care! 

If anyone has anything spare to donate it would be much appreciated and will certainly spur me on with my training! Thanks very much in advance!

A bit about CF and CF care below, but first, where the proceeds will go to:

With the proceeds from the fundraising, we intend to purchase Pari E-Flow nebulisers for the North East CF Hospital units. These machines are not available on the NHS as they cost around £700 each. They are vastly superior to the machines offered by the NHS which have to be plugged into the mains. The Pari eFlow allows children to be able to carry on with their lives while taking their medication as, being battery operated, they are light and portable and much quicker to use. This is a massive advantage when a child needs the medication multiple times a day.

Cystic Fibrosis Care gives grants to people with CF who are experiencing hardship and difficulty. We have been receiving many more applications recently for emergency food vouchers and welfare grants from people in dire need.

Cystic Fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. 1 in 25 people carry the CF gene. 1 in 4 children born to parents who both have the CF gene will have CF.

It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and may eventually stop working properly.

Most cases of Cystic Fibrosis in the UK are now identified through screening tests carried out soon after birth. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis.

A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who have it.

The cost-of-living crisis has made life harder for everybody, but it has made life even more difficult for people living with Cystic Fibrosis. Most people know that CF affects the lungs, but it is less well known that CF causes many other health problems; The inability to digest food properly means that people with CF need an expensive high calorie diet, rich in nutrition which puts strain on household budgets.

We need to raise additional funds to be able to give the help directly to people in need. That is why we are asking for your help now to donate to our Campaign.

Thank You

Cystic Fibrosis Care

Raising for:

Cystic Fibrosis Care
286%

Funded

  • Target
    £300
  • Raised so far
    £858
  • Number of donors
    35

My Story

Anyone who knows me will know I am not a natural runner! So it may not be fast or pretty, but I am going to be dragging myself round the GNR for CF care! 

If anyone has anything spare to donate it would be much appreciated and will certainly spur me on with my training! Thanks very much in advance!

A bit about CF and CF care below, but first, where the proceeds will go to:

With the proceeds from the fundraising, we intend to purchase Pari E-Flow nebulisers for the North East CF Hospital units. These machines are not available on the NHS as they cost around £700 each. They are vastly superior to the machines offered by the NHS which have to be plugged into the mains. The Pari eFlow allows children to be able to carry on with their lives while taking their medication as, being battery operated, they are light and portable and much quicker to use. This is a massive advantage when a child needs the medication multiple times a day.

Cystic Fibrosis Care gives grants to people with CF who are experiencing hardship and difficulty. We have been receiving many more applications recently for emergency food vouchers and welfare grants from people in dire need.

Cystic Fibrosis is an inherited condition in which the lungs and digestive system can become clogged with thick, sticky mucus. 1 in 25 people carry the CF gene. 1 in 4 children born to parents who both have the CF gene will have CF.

It can cause problems with breathing and digestion from a young age. Over many years, the lungs become increasingly damaged and may eventually stop working properly.

Most cases of Cystic Fibrosis in the UK are now identified through screening tests carried out soon after birth. It's estimated that 1 in every 2,500 babies born in the UK has Cystic Fibrosis.

A number of treatments are available to help reduce the problems caused by the condition, but unfortunately average life expectancy is reduced for people who have it.

The cost-of-living crisis has made life harder for everybody, but it has made life even more difficult for people living with Cystic Fibrosis. Most people know that CF affects the lungs, but it is less well known that CF causes many other health problems; The inability to digest food properly means that people with CF need an expensive high calorie diet, rich in nutrition which puts strain on household budgets.

We need to raise additional funds to be able to give the help directly to people in need. That is why we are asking for your help now to donate to our Campaign.

Thank You