Haemochromatosis UK

Paul's page

Paul Press

Paul Press

My Story

I was diagnosed with Genetic Haemochromatosis in 2015, at the age of 43, after visiting 11 different doctors, in 10 hospitals, in three countries, across three continents, over a period of five years - all because I was convinced that "something wasn't right" - and I am one of the lucky ones.  I had never heard of the condition before that, and yet, when I look back, my symptoms started around the age of 16 - maybe even earlier.

Genetic Haemochromatosis is easily treatable, but often goes undiagnosed, leading to long-term organ damage, and, ultimately, death.  It is one of the most common genetic disorders in the UK, where it could affect up to 1 in 200 people (in Irish populations, that proportion rises to 1 in 83).  Haemochromatosis UK (formerly known as the Haemochromatosis Society) is a charitable organisation that works alongside healthcare providers to promote early diagnosis, leading to normal life expectancies in those who receive prompt treatment.

60,000 determined and dedicated runners make the AJ Bell Great North Run the World’s biggest and best half marathon – famous for its warm North East welcome, unbeatable atmosphere and the millions raised for good causes.

We’ll see runners back on the AJ Bell Great North Run, city to sea course, on Sunday as we return to our traditional finish line in South Shields. The AJ Bell Great North Run is an opportunity for us all to come together and support one another.

If you're unable to run and have to withdraw from the 2024 AJ Bell Great North Run, you have the option to defer your 2024 AJ Bell Great North Place to the next year.  You can find more information here. 

If you have any event queries, see our FAQ section here.

Haemochromatosis UK

Raising for:

Haemochromatosis UK
54%

Funded

  • Target
    £1,000
  • Raised so far
    £544
  • Number of donors
    16

My Story

I was diagnosed with Genetic Haemochromatosis in 2015, at the age of 43, after visiting 11 different doctors, in 10 hospitals, in three countries, across three continents, over a period of five years - all because I was convinced that "something wasn't right" - and I am one of the lucky ones.  I had never heard of the condition before that, and yet, when I look back, my symptoms started around the age of 16 - maybe even earlier.

Genetic Haemochromatosis is easily treatable, but often goes undiagnosed, leading to long-term organ damage, and, ultimately, death.  It is one of the most common genetic disorders in the UK, where it could affect up to 1 in 200 people (in Irish populations, that proportion rises to 1 in 83).  Haemochromatosis UK (formerly known as the Haemochromatosis Society) is a charitable organisation that works alongside healthcare providers to promote early diagnosis, leading to normal life expectancies in those who receive prompt treatment.

60,000 determined and dedicated runners make the AJ Bell Great North Run the World’s biggest and best half marathon – famous for its warm North East welcome, unbeatable atmosphere and the millions raised for good causes.

We’ll see runners back on the AJ Bell Great North Run, city to sea course, on Sunday as we return to our traditional finish line in South Shields. The AJ Bell Great North Run is an opportunity for us all to come together and support one another.

If you're unable to run and have to withdraw from the 2024 AJ Bell Great North Run, you have the option to defer your 2024 AJ Bell Great North Place to the next year.  You can find more information here. 

If you have any event queries, see our FAQ section here.